Update from Cincinnati

March 2, 2017

It has been a busy couple of days for us here in Cincinnati with things changing quickly. We met with a team of doctors and health care professionals and had a very long discussion about Greta’s situation. It is not a straight forward, easy case with Greta. Her tumor has changed and is getting more aggressive.

We went through many different scenarios with the team here on what might happen. The transplant review board had an initial meeting today to discuss Greta. Not unexpectedly, she was not approved for a transplant today. The good news is the door is still open, but ultimately, we could still be facing a rejection for transplant here as well. The other good news is the oncologist thinks he can help us overcome this. The team believes if we demonstrate that we can at least get her tumor somewhat under control, we will have a better chance of being approved for the transplant.

We are going to do a couple of things with Greta to try to make this transplant happen. The first thing we are going to do is to give her more chemotherapy. This is going to be happening tomorrow morning. The oncologist here has some ideas on what different chemos he can try to get control of her tumor.

The second thing we have been discussing is a procedure called TARE or trans arterial radio embolization.This will also hopefully stop or slow down the tumor in her liver and help to prevent the tumor from spreading to any other part of her body.

Once we have done these things, some time may need to pass to be able to demonstrate that the cancer has not already spread. Right now we are being told 1-2 months.
We believe we are doing what is best for Greta and giving her the chance she deserves. The team here in Cincinnati seems willing to push the envelope a bit further than other institutions. However, at the end of the day, we are still not guaranteed to get the liver transplant we need to save Greta, but we have to try and that is why we are here.

The support we have received so far has been astounding and humbling and more than I ever could have imagined. Steve and I are both born and raised Calgarians and the support from the community, the country and even further beyond has been so uplifting during these stressful days. Thank you from the bottom of our hearts!

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